Associations Autism/Down Syndrome Dual Diagnosis General Resources
Health Physician References Physician Resources - Medical Papers

• DSA of Greater Cincinnati Adoption Awareness
• Mile High Down Syndrome Association
• National Association for Down Syndrome
• National Down Syndrome Congress
• National Down Syndrome Society

• Down Syndrome-Autism Connection
• Autism Society of Colorado
• Bella Online: Down Syndrome and Autism Dual Diagnosis

• Adams County: North Metro Community Services
• Arapahoe / Douglas Counties / Aurora: Developmental Pathways
• Jefferson / Summit / Clear Creek / Gilpin Counties:
  Developmental Disabilities Resource Center
• Denver County: Denver Options, Inc.

• Cheyenne / Elbert / Kit Carson / Lincoln / Logan / Morgan / Phillips / Sedgwick / Washington / Yuma Counties: Eastern Colorado Services for the Developmentally Disabled, Inc.

• El Paso / Park and Teller Counties/Colorado Springs: Resource Exchange
• Boulder / Broomfield Counties: Imagine!
• Larimer County: Foothills Gateway
• Weld County: Envision

• Huerfano / Las Animas Counties: Southern Colorado Developmental Disabilities, Inc.
• Chaffee/ Custer / Fremont Counties: Starpoint
• Pueblo County: Colorado Bluesky Enterprises, Inc.

• Baca / Eastern Bent / Kiowa / Prowers Counties: Southeastern Developmental Services, Inc.
  Email: sdsduke@mindspring.com
• Crowley / Otero / Western Bent Counties: Arkansas Valley Community Center

• Mesa County: Mesa Developmental Services, Inc.
  Email: mlawrie@mds.acsol.net

• Delta / Gunnison / Hinsdale / Montrose / Ouray / San Miguel Counties:
  Community Options, Inc.
• Archuleta / Dolores / La Plata / Montezuma / San Juan Counties:
  Community Connections, Inc.
• Alamosa / Conejos / Costilla / Mineral / Rio Grande / Saguache Counties:
  Blue Peaks Developmental Services, Inc.
  Email: bluepeak@fone.net

• Eagle / Garfield / Lake / Pitkin Counties: Mountain Valley Developmental Services, Inc.
• Grand / Jackson / Moffat / Rio Blanco / Routt Counties: Horizons Specialized Services, Inc.
  Email: smizen@rmi.net

• Adam's Camp
• Arc of Colorado
• Colorado Assistive Technology Project
• Down Syndrome Links
• DisabilityInfo.gov
• Effective Interaction: Communicating With and About People with Disabilities in the Workplace
• Healthy Independent Leasure and LifestyleS (H.I.L.L.S.)
• The Hero Alliance
• The Rhythm Within
  • Click here for information about the new Generations program
• JFK Partners
• My Brother and Me
• National Dissemination Center for Children with Disabilities
• Office on Disability, U.S. Department of Health and Human Services

• "A Good Long Life," Karl Perrin
• Down Syndrome Growth Charts
• Down Syndrome Health Issues and Down Syndrome Clinics in the USA
• Down Syndrome Quarterly
• Down's Heart Group
• Early Stages of Alzheimer's Disease
• Kennedy Krieger Institute
• KidsHealth

Physician References

The information we have available about health and medical issues for people with Down syndrome has grown significantly over the past few decades. An increase in clinics specializing in Down syndrome (like the Denver Adult Down Syndrome Clinic), improved data collection systems, and more research are all factors that have helped us move forward.

Listed below are health care guidelines designed to be a tool for "catching" and preventing problems that often go undiagnosed. The flow sheet can be placed directly in the patient chart so health maintenance can be easily monitored.

• Flow chart for individuals with DS age 0 - 20
• Flow chart for individuals with DS age 21 - 40 years
• Flow chart for individuals with DS age 41 - 60 years
• Featured Abstracts About Down Syndrome, compiled by Dr. Len Leshin
• Down Syndrome: Health Issues - News and Information for Parents and Professionals
  

• "The Adult Down Syndrome Center" by Dennis E. McGuire and Brian Chicoine (6.4k PDF)
• Ask the Doctor: Thyroid Testing by Brian Chicoine, MD. (3.6k PDF)
• "Depressive Disorders in Adults with Down Syndrome" by Dennis E. McGuire, PhD., and Brian Chicoine, MD. in The Habilitative Mental Healthcare Newsletter, Vol. 15 no. 1, January/February 1996 (40.4k PDF)
• "Development of a Clinic for Adults With Down Syndrome" by Brian Chicoine, Dennis McGuire, Sheila Heibein, and Donna Gilly. In Mental Retardation, Vol. 32 No. 2, April 1994 (29.1k PDF)
• The Groove by Dennis McGuire, PhD. (13k PDF)
• "Health Care Management of Adults with Down Syndrome" by David S. Smith, MD, in American Family Physician, September 15, 2001
• Health Issues for Adults with Down Syndrome by Brian Chicoine, MD, Dennis McGuire, PhD., and Steffi Gratigny, MD., April 2002 (80k PDF)
• "Hypothyroidism Presenting as Severe Psychological and Mental Dysfunction in an Adult with Down Syndrome" by Brian Chicoine in Success Stories in Developmental Disabilities, Vol. II (edited by Dale Antanitus, MD.) (9.3k PDF)
• Know the risk of Hepatitis B (3.8k PDF)
• Longevity of a Woman With Down Syndrome: A Case Study by Brian Chicoine and Dennis McGuire (15.2k PDF)
• Overweight Prevalence in Persons with Down Syndrome by Stephen S. Rubin, James H. Rimmer, Brian Chicoine, David Braddock, and Dennis E. McGuire (23.9k PDF)
• Promoting Health in Adults with Down Syndrome by Brian Chicoine, MD., Dennis McGuire, PhD., and Carolyn V. Young, MA-CCC-A/SLP. (30k PDF)
• "'Self-Talk' in Adults with Down Syndrome" by Dennis McGuire, PhD, Brian A. Chicoine, MD., and Elaine Greenbaum, PhD. in Disability Solutions, Vol. 2 No. 2, July/August 1997 (12.8k PDF)
• Sleep Apnea by Paula Cho (8k PDF)
• Sleep Hygiene by David Duff, MD. (7k PDF)
• "Specialty Clinic Perspectives" by Brian Chicoine, Dennis McGuire, and Stephen S. Rubin. Chapter 15, in Dementia, Aging, and Intellectual Disabilities: A Handbook (edited by Matthew P. Janicki and Arthur J. Dalton) (35k PDF)
• The Surgeon General's Call to Action to Improve the Health and Wellness of Persons with Disabilities, U.S. Department of Health and Human Services, Public Health Service, Office of the Surgeon General, 2005.
• Office on Disability, U.S. Department of Health and Human Services